Condition Specfic Help

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This page contains a list of diseases that a number of children in Ireland and Northern Ireland suffer from. This is not an exhaustive list, there are many more rare diseases that are not listed here. Where possible we have tried to link to national charities/bodies whose work is orienated towards a specific diesease. If you feel that there should be a disease added to this list, find any broken links or would like to be included as a link for any of the below diseases please contact 

A more comprehensive list of life limiting children's diseases can be downloaded here: Directory of Life-Limiting conditions

Not all children will receive a diagnosis of what their condition is or can take many years to actually determine what the condition is. A page dedicated to undiagnosed children can be access here: Undiagnosed

Battens Disease
Cerebral palsy
Congenital Heart Defect
Cystic Fibrosis
Immunodeficiency diseases
Inherited Metabolic Disorders
Muscular Dystrophy
Osteogenesis Imperfecta
Renal Disease
Spina Bifida and Hydrocephalus